My name is Clémence. I’m 25 and I was born prematurely at 7 months with a fairly rare genetic disease, hypertrophic cardiomyopathy, sometimes called hypertrophic obstructive cardiomyopathy. A mutation of the MYH7 (myosin heavy chain) gene I carry caused this disease. In my case, the wall [...]
“I was at Roissy airport after a long-haul flight. While waiting in the endless customs line, I had trouble moving my left leg. It felt terribly heavy and painful. It was worse than having my leg fall asleep. I had been drinking water and walking often during the eight-hour flight. I figured this [...]
At 70 years of age, I was in good health and never thought I’d one day be diagnosed as a person with heart failure (dilated cardiomyopathy). I had a narrow escape… It was the only organ I didn’t think would be affected. Until that point, my physical condition hadn’t caused any problems as I [...]