My name is Clémence. I’m 25 and I was born prematurely at 7 months with a fairly rare genetic disease, hypertrophic cardiomyopathy, sometimes called hypertrophic obstructive cardiomyopathy. A mutation of the MYH7 (myosin heavy chain) gene I carry caused this disease. In my case, the wall [...]
“I didn’t have any chest pain when I had my heart attack. I had gastric pain deep in my sternum and I thought it was bad digestion. I also had pain in my back. I thought it was my spine, which had already been hurting. I tried to soothe the pain with a hot water bottle, but it still spread. I [...]
I’m the proud mom of a little four-month-old girl. Something unique about me: I had a heart transplant three years ago. It saved my life and allowed me to fulfill my dream of becoming a mother, something that had been completely inaccessible before. That’s because I’d been diagnosed with [...]